Pain I deal with, from chronic illness

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UncleBucko

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Feb 19, 2025
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If anyone has insight suggestions ect it would be greatly appreciated, it’s a long story I’ll try to make it quick, originally got diagnosed with lupus, it was attacking blood vessels had some negative clotting labs, 4-5 years ago been on Xanax to help deal with it, one of the only things I found to help pain and keep me from freaking out. Then got really sick later found out I have Nuero bechettes, super rare disorder that affects my brain o go threw times where it feels as if my brain ain’t working and panic from it also needed Xanax for it. The past 2 years my immune system has been destroying my nerves, had nerves burnt up in my back, and a bunch of stuff in my arm threwout chest and most recently the occipital nerves are bad, 4 months of chronic pain all day every day, and doctors took me off of Xanax won’t give me anything besides robaxin (which is terrible) and I don’t know what to do no more. Pain is unbearable daily and cannot get help, and I feel they should be looking at what is causing my body’s nerves to get destroyed, and for any relief I have to purchase from RC sites and such which is putting my job at risk plus the legality of it all. Just in a shitty spot trying to find a way out. But this disease is going to make me go insane if i can’t help it somehow or use medication to cope. Sorry for the long read if you made it this far thank you for hearing me out
 
I see you and I hear you. We have a chronic pain group on here. Robaxin is not worth the time to even fill the script. I do not know if you can ask for xanaflex or gabapentin but it would work better. Many many many pain warriors here all caught in a spider web or government over exaggeration and scared doctors and a tainted supply. Making-for one hell of a ride. You could even check into your local sub dr. It can work for pain although I find it is not that great and short lived but hang in there. Always keep a mobile heat pad around. Not sure if you have had any ablations but it’s worth the thought (sometimes)
 
Thank you for the reply ! When they cut me off the xans, so I bought them off the street because it was either get relief from my illness or off myself rot was that bad at the time. I later came back they bring tested me and I poped hot for pressed xans with fetty in it, so now anytime I ask for any kind of medical treatment they say “well you have a problem with drugs” and I try to tell them like look I’m so sick and in pain and my brain is scrambled from the disease attacking it as well (even had a mini stroke). So now it’s a struggle trying to get anything l was prescribed 90 1mg xans a month and 120 perc 10s. And I was able to manage fine untill they took it all away for nothing. Was using kratom frequently but it caused a whole load of issues in its own after extended use so I had to quit that my blood pressure was up over 210 and hospitalized I think because of kratom use
 
UncleBucko said:
Thank you for the reply ! When they cut me off the xans, so I bought them off the street because it was either get relief from my illness or off myself rot was that bad at the time. I later came back they bring tested me and I poped hot for pressed xans with fetty in it, so now anytime I ask for any kind of medical treatment they say “well you have a problem with drugs” and I try to tell them like look I’m so sick and in pain and my brain is scrambled from the disease attacking it as well (even had a mini stroke). So now it’s a struggle trying to get anything l was prescribed 90 1mg xans a month and 120 perc 10s. And I was able to manage fine untill they took it all away for nothing. Was using kratom frequently but it caused a whole load of issues in its own after extended use so I had to quit that my blood pressure was up over 210 and hospitalized I think because of kratom USA
UncleBucko said:
Thank you for the reply ! When they cut me off the xans, so I bought them off the street because it was either get relief from my illness or off myself rot was that bad at the time. I later came back they bring tested me and I poped hot for pressed xans with fetty in it, so now anytime I ask for any kind of medical treatment they say “well you have a problem with drugs” and I try to tell them like look I’m so sick and in pain and my brain is scrambled from the disease attacking it as well (even had a mini stroke). So now it’s a struggle trying to get anything l was prescribed 90 1mg xans a month and 120 perc 10s. And I was able to manage fine untill they took it all away for nothing. Was using kratom frequently but it caused a whole load of issues in its own after extended use so I had to quit that my blood pressure was up over 210 and hospitalized I think because of kratom use
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now I just feel like I have to take matters into my own hands to keep my sanity l, but it’s way more expensive and if you need pain meds way more dangerous
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O-DSMT seems safe and effective w/o side effects....legal or quasi-so.
That said, it's in the "moderate" category. But it is low cost and if you don't up your dose you will be fine. I have no doubt it helps a LOT.
 
UncleBucko said:
Thank you for the reply ! When they cut me off the xans, so I bought them off the street because it was either get relief from my illness or off myself rot was that bad at the time. I later came back they bring tested me and I poped hot for pressed xans with fetty in it, so now anytime I ask for any kind of medical treatment they say “well you have a problem with drugs” and I try to tell them like look I’m so sick and in pain and my brain is scrambled from the disease attacking it as well (even had a mini stroke). So now it’s a struggle trying to get anything l was prescribed 90 1mg xans a month and 120 perc 10s. And I was able to manage fine untill they took it all away for nothing. Was using kratom frequently but it caused a whole load of issues in its own after extended use so I had to quit that my blood pressure was up over 210 and hospitalized I think because of kratom use
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I get this 1000% just keep trying what works for you. The way they are pushing down the manufacturers and the fact some pharma won’t even stock what you mention God help us all. Please stay safe. Kratom can be a tricky beast with bp. Kava can help some. Lyrica helps or no go on that too? It’s all such bs not to get me started…but it is.
 
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  1. P @ psychedpsych: Have good day people, and I hate texting messages lol
  2. B @ bigblueallda: @drjimmy1964 lol I am actually surprised it is a real ID. I needed those documents because my license had been expired for over a year and I had to start all over. Nothing was in the system. It was a huge mess. I had no clue I was signing up for Real ID. They asked me for the exact same documents that I needed for a State ID Card.
  3. S @ soupson: bless your heart buddy. no sense of grammar or proper insults/jokes. you need this place in ways i can’t comprehend
  4. drjimmy1964 @ drjimmy1964: Sweet Ol' Me asked about Real ID, Stoup. Are you responsive to emails ? LMAO
  5. drjimmy1964 @ drjimmy1964: I smell some Stoup. Is Stoup's on ?
  6. drjimmy1964 @ drjimmy1964: @bigblueallda You win. I am lost. Thought you were surprised your license was a Real ID, now you say you provided those items.
  7. drjimmy1964 @ drjimmy1964: @bigblueallda I was under the impression that you'd need all of the points to get a real ID . I'd check it's validity if you're gonna fly domestic any time soon, just to make sure. Not to tell you what to do, sorry -
  8. B @ bigblueallda: @drjimmy1964 In my state to get a Real ID, I need SS card, Birth Certificate and two proofs of residency. Which I am positive I had to provide to get a new ID when it had been expired.
  9. drjimmy1964 @ drjimmy1964: @Turbo259 advertising - putting in writing for example an negative action to show they are guilty prior to taking action.
  10. B @ bigblueallda: I haven't flown in an airplane in 20 years lol. Can't recall the last government building I have been in either. According to the symbol it tells me I should have on my ID to make it a Real ID I do have one in my state
  11. Gracie5 @ Gracie5: Hey @CuCeltic99!
  12. drjimmy1964 @ drjimmy1964: @Turbo259 advertising - putting in writing for example an negative action to show they are guilty prior to taking action.
  13. drjimmy1964 @ drjimmy1964: @bigblueallda are you sure you have a Real ID ? I mean , they really want 6 points of proof and 1 for your addy and 1 for your SSN. Did you maybe get it done and forgot and flew out of the country or something ?
  14. drjimmy1964 @ drjimmy1964: @bigblueallda are you sure you have a Real ID ? I mean , they really want 6 points of proof and 1 for your addy and 1 for your SSN. Did you maybe get it done and forgot and flew out of the country or something ?
  15. S @ soupson: did anyone ask about real id or is sweet ol jimmy just rambling
  16. T @ Turbo259: @drjimmy1964 what did you mean by advertise? not gettin the verbiage, DM works if anything, just didnt understand
  17. B @ bigblueallda: {Visit your local Driver Service Bureau with the necessary documents: original birth certificate, Social Security card, and two proofs of your state's residency. } I definitely provided this when I had to get a new ID when i let mine go expired too long maybe I unknowingly got one but I think it is pretty standard here.
  18. B @ bigblueallda: Well it was a state id renewal. Before that there was a mixup and I had lost my birth certficate and social security number. After a couple of weeks and finally getting several documents in order I was able to get a state ID. It had been expired previously for a little too long and they wanted all kinds of proof. It was a mess. But nah I looked up what to look for an my state's ID to see if it is a Real Id or not and my card as the symbol it is supposed to have. I'll take a closer look though
  19. drjimmy1964 @ drjimmy1964: @bigblueallda are you sure you have a Real ID ? I mean , they really want 6 points of proof and 1 for your addy and 1 for your SSN. Did you maybe get it done and forgot and flew out of the country or something ?
  20. drjimmy1964 @ drjimmy1964: Actually it says "Not For Real ID Purposes". That is my 2022 renewal of my 2018 picture ID. I am not due till 2026 and I am sure they will make me go in since my pic would be 8 years old - they used to make you go in in my state for aging when I was younger, then went paper - then back to picture ( I think 9/11 to blame for that ) but relaxed it.
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