UncleBucko
Member
- Joined
- Feb 19, 2025
- Messages
- 8
If anyone has insight suggestions ect it would be greatly appreciated, it’s a long story I’ll try to make it quick, originally got diagnosed with lupus, it was attacking blood vessels had some negative clotting labs, 4-5 years ago been on Xanax to help deal with it, one of the only things I found to help pain and keep me from freaking out. Then got really sick later found out I have Nuero bechettes, super rare disorder that affects my brain o go threw times where it feels as if my brain ain’t working and panic from it also needed Xanax for it. The past 2 years my immune system has been destroying my nerves, had nerves burnt up in my back, and a bunch of stuff in my arm threwout chest and most recently the occipital nerves are bad, 4 months of chronic pain all day every day, and doctors took me off of Xanax won’t give me anything besides robaxin (which is terrible) and I don’t know what to do no more. Pain is unbearable daily and cannot get help, and I feel they should be looking at what is causing my body’s nerves to get destroyed, and for any relief I have to purchase from RC sites and such which is putting my job at risk plus the legality of it all. Just in a shitty spot trying to find a way out. But this disease is going to make me go insane if i can’t help it somehow or use medication to cope. Sorry for the long read if you made it this far thank you for hearing me out