Pain I deal with, from chronic illness

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UncleBucko

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Feb 19, 2025
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If anyone has insight suggestions ect it would be greatly appreciated, it’s a long story I’ll try to make it quick, originally got diagnosed with lupus, it was attacking blood vessels had some negative clotting labs, 4-5 years ago been on Xanax to help deal with it, one of the only things I found to help pain and keep me from freaking out. Then got really sick later found out I have Nuero bechettes, super rare disorder that affects my brain o go threw times where it feels as if my brain ain’t working and panic from it also needed Xanax for it. The past 2 years my immune system has been destroying my nerves, had nerves burnt up in my back, and a bunch of stuff in my arm threwout chest and most recently the occipital nerves are bad, 4 months of chronic pain all day every day, and doctors took me off of Xanax won’t give me anything besides robaxin (which is terrible) and I don’t know what to do no more. Pain is unbearable daily and cannot get help, and I feel they should be looking at what is causing my body’s nerves to get destroyed, and for any relief I have to purchase from RC sites and such which is putting my job at risk plus the legality of it all. Just in a shitty spot trying to find a way out. But this disease is going to make me go insane if i can’t help it somehow or use medication to cope. Sorry for the long read if you made it this far thank you for hearing me out
 
I see you and I hear you. We have a chronic pain group on here. Robaxin is not worth the time to even fill the script. I do not know if you can ask for xanaflex or gabapentin but it would work better. Many many many pain warriors here all caught in a spider web or government over exaggeration and scared doctors and a tainted supply. Making-for one hell of a ride. You could even check into your local sub dr. It can work for pain although I find it is not that great and short lived but hang in there. Always keep a mobile heat pad around. Not sure if you have had any ablations but it’s worth the thought (sometimes)
 
Thank you for the reply ! When they cut me off the xans, so I bought them off the street because it was either get relief from my illness or off myself rot was that bad at the time. I later came back they bring tested me and I poped hot for pressed xans with fetty in it, so now anytime I ask for any kind of medical treatment they say “well you have a problem with drugs” and I try to tell them like look I’m so sick and in pain and my brain is scrambled from the disease attacking it as well (even had a mini stroke). So now it’s a struggle trying to get anything l was prescribed 90 1mg xans a month and 120 perc 10s. And I was able to manage fine untill they took it all away for nothing. Was using kratom frequently but it caused a whole load of issues in its own after extended use so I had to quit that my blood pressure was up over 210 and hospitalized I think because of kratom use
 
UncleBucko said:
Thank you for the reply ! When they cut me off the xans, so I bought them off the street because it was either get relief from my illness or off myself rot was that bad at the time. I later came back they bring tested me and I poped hot for pressed xans with fetty in it, so now anytime I ask for any kind of medical treatment they say “well you have a problem with drugs” and I try to tell them like look I’m so sick and in pain and my brain is scrambled from the disease attacking it as well (even had a mini stroke). So now it’s a struggle trying to get anything l was prescribed 90 1mg xans a month and 120 perc 10s. And I was able to manage fine untill they took it all away for nothing. Was using kratom frequently but it caused a whole load of issues in its own after extended use so I had to quit that my blood pressure was up over 210 and hospitalized I think because of kratom USA
UncleBucko said:
Thank you for the reply ! When they cut me off the xans, so I bought them off the street because it was either get relief from my illness or off myself rot was that bad at the time. I later came back they bring tested me and I poped hot for pressed xans with fetty in it, so now anytime I ask for any kind of medical treatment they say “well you have a problem with drugs” and I try to tell them like look I’m so sick and in pain and my brain is scrambled from the disease attacking it as well (even had a mini stroke). So now it’s a struggle trying to get anything l was prescribed 90 1mg xans a month and 120 perc 10s. And I was able to manage fine untill they took it all away for nothing. Was using kratom frequently but it caused a whole load of issues in its own after extended use so I had to quit that my blood pressure was up over 210 and hospitalized I think because of kratom use
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now I just feel like I have to take matters into my own hands to keep my sanity l, but it’s way more expensive and if you need pain meds way more dangerous
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O-DSMT seems safe and effective w/o side effects....legal or quasi-so.
That said, it's in the "moderate" category. But it is low cost and if you don't up your dose you will be fine. I have no doubt it helps a LOT.
 
UncleBucko said:
Thank you for the reply ! When they cut me off the xans, so I bought them off the street because it was either get relief from my illness or off myself rot was that bad at the time. I later came back they bring tested me and I poped hot for pressed xans with fetty in it, so now anytime I ask for any kind of medical treatment they say “well you have a problem with drugs” and I try to tell them like look I’m so sick and in pain and my brain is scrambled from the disease attacking it as well (even had a mini stroke). So now it’s a struggle trying to get anything l was prescribed 90 1mg xans a month and 120 perc 10s. And I was able to manage fine untill they took it all away for nothing. Was using kratom frequently but it caused a whole load of issues in its own after extended use so I had to quit that my blood pressure was up over 210 and hospitalized I think because of kratom use
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I get this 1000% just keep trying what works for you. The way they are pushing down the manufacturers and the fact some pharma won’t even stock what you mention God help us all. Please stay safe. Kratom can be a tricky beast with bp. Kava can help some. Lyrica helps or no go on that too? It’s all such bs not to get me started…but it is.
 
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