Fighting Fibro

Aloneoncloud9

Aloneoncloud9

Member
Joined
Sep 18, 2015
Messages
14
Since I didn't see a topic about fibromyalgia I thought I would start one. I hope that's ok. If I missed it feel free to direct me. Anyway just wondering if anyone with fibromyalgia has had any success with relief? What works and what doesn't? I've tried nearly every med used in treatment and the only one that helped at all was leerica. Gaba didn't do anything for me and sa vella made me sick as a dog. Also if anyone knows of alternative treatments feel free to list um. Massage therapy seems to help me some.

 
hey...welcom to forum..

just wanted you to know since i suffer badley so bad im disabled..

i wanted you to know there are many chats about fibro and related..when it doubt use search function...

Im sorry your dealing wirh so much..i would chat but im off to bed in a minute...

 
sadminion said:
hey...welcom to forum..

just wanted you to know since i suffer badley so bad im disabled..

i wanted you to know there are many chats about fibro and related..when it doubt use search function...

Im sorry your dealing wirh so much..i would chat but im off to bed in a minute...
Click to expand...
Thank you very much. I will look into the chats. I'm so sorry you have to deal with this too. I hope you get some relief. Good night and sleep well!

 
I also suffer from fibro. There are times it flares up so bad I feel like I have the flu. All my muscles are     tender to the touch. My pain meds help some but when it flares up it is very painful. Sorry anyone has to deal with this disease.

 
this has been me the last few days...a few days ago i woke up in the middle of the night screaming in pain...omg i couldnt get up to pee....my husband carried me...

the bed hurt....its so unfair an whats stupid is some docs still think fibro doesnt exists /default_sad.png  i have it so bad it disables me.

I found no med really works at least for the long haul....deep tissue massage is great though who can afford that several times a week /default_sad.png

 
You know I am glad I cam across this, first I thought I was nuts...

I was diagonosed 2 yrs ago. Have small therapy but time, money and drug laws you know...

But the last week or so has been hell!! My lower thumb knuckles, neck, right foot big toe area , hip, left shoulder blade, both elbows and ankles are screaming with pain. 

I totally agree! I have never taken much stronger than a 30 rox but when it's bad .. You still feel it. I have a spa thank the lord. I work in the casual living industry. We sell spas high end outdoor/ indoor furniture, billiards,pools and did sell beds for a bit.

But sometimes I can't even get motivated to get in the spa! 

But sad onion I get it. Sometimes crawling is better than walking. I hate my feet right now they are swollen. Do u ever think the full moon effects shit? I just don't know why this last flair up has been o bad! Cant make a fist.. I have gut ate psoriasis too. So sprinkled in red dots at the moment.

But sounds like u are a bit worse off sister,I do love a good message.  I really want a hot rock one on my back ! 

 
Akup7ich said:
You know I am glad I cam across this, first I thought I was nuts...

I was diagonosed 2 yrs ago. Have small therapy but time, money and drug laws you know...

But the last week or so has been hell!! My lower thumb knuckles, neck, right foot big toe area , hip, left shoulder blade, both elbows and ankles are screaming with pain. 

I totally agree! I have never taken much stronger than a 30 rox but when it's bad .. You still feel it. I have a spa thank the lord. I work in the casual living industry. We sell spas high end outdoor/ indoor furniture, billiards,pools and did sell beds for a bit.

But sometimes I can't even get motivated to get in the spa! 

But sad onion I get it. Sometimes crawling is better than walking. I hate my feet right now they are swollen. Do u ever think the full moon effects shit? I just don't know why this last flair up has been o bad! Cant make a fist.. I have gut ate psoriasis too. So sprinkled in red dots at the moment.

But sounds like u are a bit worse off sister,I do love a good message.  I really want a hot rock one on my back ! 
Click to expand...
it is very real & you are not nuts. I personally think those of us that suffer from chronic pain are at higher risk because our nerve endings go crazy. When mine flares up I know it. My doctor says it is definitely real. I also have psoriasis also. I have it on my hands & have to get steroid shots. I think it could be related. I hope you have a compassionate doc. 

 
im in lots of pain..( ps, maybei am more of a sad onion then minion these days akup, hehe....:)

im thinking i may have to make a hospital run because the pain im in...i was supposed to get a letter today but the darn girl at the mg resort...put the name backwards...so now i may not get my love letter till monday,,:(

 
I hate that. I had a new guy at Walmart. I literally got around the counter and typed it for him. 

My spell check always changes sad minion to sad onion if I ont catch it. 

My uncle and a gret aunt have it. Same side of the family.  My uncle came across some research about how the skin is involved in other ways too. Like the transfer of pain signals to the nerves way more frequently than the average person. I will try to post a link about it.

 
fbro is  disease where all your nerves get the wrong signal and backfire,,and continue like in  CIRCLE...it goes around and around each time getting worse, unless we can get a med we tak to stop the horrible rotation....

basically all our nerves are damamged...

 
Thank you God I'm not alone in this. It feels line in just a ball of pain.  The diagnosis was really hard on me. 

 
My mom had for years and we never believed her… I hate to say that, but it's the truth.  I used to badger her about getting out of bed and just going along with her day like other people – I couldn't comprehend that that was too much for her to handle.

Now I've got it--I was diagnosed in 2009 (I was in my late 30s) and I can't get the GPs to take me seriously about it. I hate that.  people don't believe me just like I didn't believe my mom.

The doctor I left back in America before I moved to England began me on a drug called amiltryptaline.  It's also an antidepressant and medication used to help people fall asleep.  Apparently it does something for nerve pain, and I have been taking it for about five years now.  Don't know if it's doing anything amazing, but I don't want to get off of it.

I take cohdeene and deehachcee when things are bad.  And oxcees when it's really bad.  But after a while these meds stop working.  I'm going to have to wean myself off them someday.  But yet, my fibro is going nowhere.   It has set up permanent camp in my body and isn't budging.   

Work, kids, life has to go on and so I have to have constant pain relief if I want to be able to keep up with my family.   As cliche as it sounds exercise – even just stretching – does help. And so does having positive people around you. When my stress goes up--that's when I have a flareup.  If only the doctors would write scripts for diazepam for the rest of my family...maybe then they wouldn't stress me out so much!?

You're not alone.  It's important that you hear that. Believe it, especially when things are at their worst.  

 
Last edited by a moderator:
I am so glad I found this thread,  I just got diagnosed today.  I have been seeing a new Rheumatologist for Raynaud's and Discoid Lupus.  I told him that I have episodes where I ache all over and feel like I have the flu and he diagnosed me with fibromyalgia.  I guess I am glad that some one finally listened to me as I have been complaining to my primary for years about these symptoms, and even went to the ER once when it got real bad.    I have been ordering Tr@amps for awhile and they seem to help take the edge off.  The Dr. prescribed Gabas which I have never taken so we shall see.  I am a recovering alcoholic so I know I need to be careful.  The pain and discomfort is pretty awful though.  Does anyone feel like they want to crawl out of their skin?  Well I am glad I'm not alone.  Any advice would be appreciated.

 
  • Like
Reactions: VII
Missy50 said:
I am so glad I found this thread,  I just got diagnosed today.  I have been seeing a new Rheumatologist for Raynaud's and Discoid Lupus.  I told him that I have episodes where I ache all over and feel like I have the flu and he diagnosed me with fibromyalgia.  I guess I am glad that some one finally listened to me as I have been complaining to my primary for years about these symptoms, and even went to the ER once when it got real bad.    I have been ordering Tr@amps for awhile and they seem to help take the edge off.  The Dr. prescribed Gabas which I have never taken so we shall see.  I am a recovering alcoholic so I know I need to be careful.  The pain and discomfort is pretty awful though.  Does anyone feel like they want to crawl out of their skin?  Well I am glad I'm not alone.  Any advice would be appreciated.
Click to expand...
The pain really sucks, I know. I too am diagnosed with it and it does seem PK's help with it however there's always better alternatives apposed from opies. Kicking opies is a whole different story, so perhaps talk to your healthcare professional regarding treatment for it. 

It does indeed feel like you want to crawl out of your skin or something along those lines. It's what I can only describe as third-degree burn pains in the muscles, it really honestly isn't a fun experience and nobody here should feel alone. I'm glad @Aloneoncloud9 opened this thread for discussion seeing we're all starting to come together as a whole to show nobody here is alone, we have the same problems and we can help eachother through anything. 

Regarding advice, the best advice I can give or anyone for that matter is discuss it further with your healthcare professional seeing it's an early diagnosis. You may need to see a specialist to get on the right meds to treat it, but try to avoid self-medicating yourself. It's very dangerous and I'd hate to see anyone here get into any harm due to such a thing.

Regards,

-VII

 
sadminion said:
hey...welcom to forum..

just wanted you to know since i suffer badley so bad im disabled..

i wanted you to know there are many chats about fibro and related..when it doubt use search function...

Im sorry your dealing wirh so much..i would chat but im off to bed in a minute...
Click to expand...
That is horrible. I am so sorry

 
To all of the last 5 or so post... I  am with u. Sometimes when I describe it people my pain they cock their head with a funny look...

ad one mentioned above the burning sensation. I get it a lot. A.m is the worst thing ever. Sometimes I roll myself over the edge of bed to floor and sit then crawl pull up and stand . I tell people sometimes the stiffness feels like those Indian burns we use to do as kids. 

I agree with the hot and cold. My pain shifts too. This week it's in my thumb joints hips ,big toe, neck and elbows. 

Amkle pain is the worst. I take an old school anti inflammatory called imfloc ? Something in shifts but it makesy blood pressure rise. 

As all of u so glad to listen and hear and not feel like it's all in my mind.

oh theuscle relaxer zana flex so helps b4 bed and if I wake up in middle of night with shakes

 
I have found that Kratom helps me during a flare. Red is suppose to help inflammation but I'm an opposite and white helps me

 
You must log in or register to reply here.
Drugbuyersguide Shoutbox
  1. rasetreydir @ rasetreydir: Stole 'Apocalypse Now' as Capt Kilgore in a 10 minute role. "Ya know, one day this war will be over.😪"
  2. Realbenzeyes @ Realbenzeyes: Fkin legend
  3. Thoth @ Thoth: @Layne_Cobain Crunk Juice!!!
  4. ClintEastwood @ ClintEastwood: Robert Duvall and a handful of others were a younger actors coach and always said no one worked as hard as those guys did. Robert Duvall and rest would read the full script 228 over and over, then after the last read they would go into how to perform their character. The young man had made it to meet Al who are greats and pull them to the side. And explain what his coach said. They all looked back and said out of every role you’ve seen me in. I have read it 228 by myself. 🫡 🫢 🫢 🫢
  5. ClintEastwood @ ClintEastwood: Sorry for comment below, but I couldn’t delete. Know I see the
  6. Realbenzeyes @ Realbenzeyes: Yeah Robert Duvall passing is a hard one. RIP
  7. Maelstrom @ Maelstrom: Damn. Just heard Robert Duvall passed away Sunday. That’s a tough one. He’s one of my favorite actors. From Lonesome Dove to the Godfather and many others. We will miss you Mr Duvall. You entertained us for 7 decades. RIP
  8. L @ Layne_Cobain: @ClintEastwood make a post about it homie they’re gonna take down your message here cuz shout box isn’t really for talking shop just random shooting the shit exc but yeh just put your message in a post on the forum in the appropriate place and ppl will get at you! 👊 ✌️
  9. ClintEastwood @ ClintEastwood: Just wondering if anyone well trusted has a supply of research thienos or benz in powders for good average prices? Or could give a shout out from me to him? Or the best lowest per each? I’ve seen some cool and some i just know are worth it. Good price rv presses too but it is much more bang for your buck. I have one good vendor. But am looking for variety’s well. Send me a message or reply if you think any. Thanks - CLINT E. Any Heavy stuff too which all seem about the ssmmmmmm
  10. Realbenzeyes @ Realbenzeyes: I always thought I should’ve been born in a much earlier time but I will say, i do enjoy my Xbox and occasional TV series tho 😂
  11. Realbenzeyes @ Realbenzeyes: I just wish the opioid epidemic never happened. Fk the turn of the century (which would be cool no doubt)! Many of my friends and family would’ve ended up in asylums like so many others. I just wish I could get back all those I’ve lost since the start
  12. L @ Layne_Cobain: 1914 I meant
  13. L @ Layne_Cobain: I often wish I lived during the turn of the century or at least before the Harrison narcotics act or whatever I think it was 1924 the fun ended but anyway yeh being able to get laudanum, ❄️ and amphetamine at the local friendly pharmacy
  14. Maelstrom @ Maelstrom: Chew on the leaves with a bit of slaked lime and enjoy the mild boost you get from the raw base.
  15. Maelstrom @ Maelstrom: I’m sure you know the folks in the mountainous regions along South Americas pacific side buy cócà leaves at the local farmers market just to help acclimate to the higher elevation when they have to head up into the hills.
  16. Maelstrom @ Maelstrom: I would certainly have bought it, swilled it, enjoyed it…. Why not? A little boost in your juice isn’t going to hurt anyone.
  17. R @ Royboy99: Exports were reported to have around 7.2mg per FL OZ, it’s success is what actually led to Coca Cola
  18. Maelstrom @ Maelstrom: Having cramps and husband thinks you’re acting hysterical (ie. PMS) the doc would either perform a certain massage to relieve the strains of motherhood and family life of that time or send you down to the local apothecary for a bottle of laudanum… A tincture of alcohol and 10% òpìųm. Fun days huh?
  19. R @ Royboy99: @malestrom: yeah thats it, my bad Mariani, yeah i considered that and also its ROA, which was oral so the bioavailability was lower than insufflation, higher degree of purity tho and longer duration … there was a significant marked increase of patents filed by Edison during the time it was released in the US. Presidents were known to use it as well, and the Queen. The pope awarded the wine the Vatican gold medal award
  20. Maelstrom @ Maelstrom: I think it was called vin Mariani. But yeah, it was all the rave back in the turn to the 20th century. Original formula Coca Cola did it for a while too. I think it was pretty weak though. Something like 200 mg per liter of wine. Enough to maybe give you a little push but unless you could pound some serious alcohol, it’d be hard to really feel the effects before the ethyl knocked you down on the ground. It was an interesting time period. Laudanum was a “hysterical” woman’s best friend.
Back
Top