Not really an addiction, but worried about dependence in my daughter

Biteme

Member
Joined
Dec 6, 2015
Messages
263
My daughter has some serious medical issues (she has cerebral palsy) and has just had her 2nd major surgery this school year. She's 11 years old & is nonverbal although she  understands everything & will answer questions with her eyes (she has an eyegaze computer--like Stephen Hawking but doesn't want to be sitting up in her wheel chair to use it 7 even  then she's still learning). The last surgery was actually more invasive--it was spinal surgery and metal rods were inserted in her spine. This time they broke and reset both her ankles and she's in casts & she seems to be having a lot more pain than the last surgery. Last time around, though, they prescribed trams & when I complained that that was giving her nightmare switched her to co-dine tylenol--actually I used pure codine I had gotten here & gave her separate tylenol because the dose she was getting was really low by weight. Anyway she got off that fine. She's always hated taking pain meds in the past.

But this time they prescribed oxic()c()d()done & she really seems to look forward to her doses. She' been on over 3 weeks now, much longer than meds before & I & her docs were afraid she has some dependency issues. She has a lot of muscle spasms & already took bacl()fen, so they upped her dose of that and added gabapettin. But we noticed that really wiped her out & messed with mood. I looked online & it saw that combo is compared with Gee-aitch-Bee. I tried it myself (we had some gaba from when our dog was taking it) & I felt major league f-ed up. So we're only giving that to her before bed. I'm just wondering what to do to break the oxy habit. We're down to twice a day & decreased the dose some, but at some point we've just got to cut it. Do people think swiching to co dine phosphate might work better? Ot even the trams? part of the problem is she has a feeding tube so she is now used to getting her meds that way & I'd have to give her those through her mouth. Amy  suggestions?

 
Last edited by a moderator:
My daughter has some serious medical issues (she has cerebral palsy) and has just had her 2nd major surgery this school year. She's 11 years old & is nonverbal although she  understands everything & will answer questions with her eyes (she has an eyegaze computer--like Stephen Hawking but doesn't want to be sitting up in her wheel chair to use it 7 even  then she's still learning). The last surgery was actually more invasive--it was spinal surgery and metal rods were inserted in her spine. This time they broke and reset both her ankles and she's in casts & she seems to be having a lot more pain than the last surgery. Last time around, though, they prescribed trams & when I complained that that was giving her nightmare switched her to co-dine tylenol--actually I used pure codine I had gotten here & gave her separate tylenol because the dose she was getting was really low by weight. Anyway she got off that fine. She's always hated taking pain meds in the past.

But this time they prescribed oxic()c()d()done & she really seems to look forward to her doses. She' been on over 3 weeks now, much longer than meds before & I & her docs were afraid she has some dependency issues. She has a lot of muscle spasms & already took bacl()fen, so they upped her dose of that and added gabapettin. But we noticed that really wiped her out & messed with mood. I looked online & it saw that combo is compared with Gee-aitch-Bee. I tried it myself (we had some gaba from when our dog was taking it) & I felt major league f-ed up. So we're only giving that to her before bed. I'm just wondering what to do to break the oxy habit. We're down to twice a day & decreased the dose some, but at some point we've just got to cut it. Do people think swiching to co dine phosphate might work better? Ot even the trams? part of the problem is she has a feeding tube so she is now used to getting her meds that way & I'd have to give her those through her mouth. Amy  suggestions?
@Biteme, so sorry to hear this. Have you consulted a PM doctor at all?  Luckily shes only been using for under a month so the weaning/discontinuation should be more manageable. I have pretty severe spinal problems. Have already had 2 neck surgeries- will probably need another in the next few years. Also have pretty bad scoliosis. After being on and off opiates for years - starting with Vikees then later having to switch to oxyc0d0n€| ocseec0ntin ...been in ocsee products for almost 3 years now. If she is taking an IR (immediate release) and lower dose you will probably just be able to wean her down slowly then cease. If she is taking and ER (extended)med - like oxyk0ntin - you may need to ask doc if something like a brief round of subs (then slowly wean from subs) might be suitable. It's very tricky because of her age. The one thing you have to your advantage though is she's only been on it a short time - and if it's at lower dose it might not be as difficult as you think. I'd definitely consult 2 or 3 doctors (including pmd and pediatrician). I can understand why she looked forward to the med. It does have a bad rap but is very effective pain reliever. That's a tough situation you're in because of course you don't want your child to have dependency problems - but you also want her to have as pain free a life as possible as I'm sure just quality of life is a strong consideration.  I wish you the best and I'll be thinking and praying about you and your family finding a workable solution.  

 
She has a good medical team--no PM specialist but her's is a complicated case & we've got 3 docs, all of whom know her. She's getting a liquid formulationso it would have to be IR. Her neurologist felt we should focus 1st on extending the time between  doses & that seems to have worked so far. I think we'll just try to decrease the dose now. Part of the issue is just the psychological association that it makes her feel better. There is a of addiction & MH problems in my family & think my real worry is that she'll have to deal w that in addition to all she's already got to deal w. Her dose is certainly not big enough to require subs & I should be reassured by that. If I multipled by the weight difference it would be the equivalant of me taking 3 mg twice a day.

 
That's a good idea. I really think you can handle that - just going kind  of slowly then eventually ceasing. Extending the time between doses for starters is a great idea.  When I've ever had to take myself off I always have tapered but never played around with the actual times of my doses so thanks for the suggestion. I AM an addict. I've been off meds for a brief time but am having such terrible pain issues about to start again. And you're right dealing with it is a nightmare. I'm so glad she hasn't been on it for very long. You should be ok.  Take care. 

 
Drugbuyersguide Shoutbox
  1. ontovzik @ ontovzik: When I had long term shingles, lasting two months. All he could give me was a 10 day supply of dilaudid. He looked at the ground while we were talking about it. I could tell he was ashamed but it was the legislature and the governor that tied his hands. He was very upset that non-medical political people, the media, and the scared public were controlling how he treated his patients. Someday those people will need meds and a hospital bed and they will be gone.
  2. ontovzik @ ontovzik: I had a great doctor, he had the true gift of a healer and he stayed on top of all the science. He straight up told me that for many people opiods work for managing short and long term pain.
  3. ontovzik @ ontovzik: He peed it in the snow in my backyard.
  4. WTF7218 @ WTF7218: @xenxra 😆😂. Yes, but only a few brave souls will ever find the number. You must first order a Dirty Shirley from the bartender. Then you must discreetly take the cocktail napkin from under your drink and unfold it. There you will find the map to the location of the phone number, and clues to decipher the code that it is written in.
  5. xenxra @ xenxra: he left his phone number scribbled in a stall at the pub three blocks down
  6. aBBazaBBa123 @ aBBazaBBa123: @rockychoc How do I contact you?
  7. N @ NYStateofMind: @Alkazar I would try one of those easy online ones .. reddit gives useful info about that
  8. Alkazar @ Alkazar: @NYStateofMind I dont really have a history of abusing things, my docotr is just really stingy. I am thinking of switching.
  9. C @ Cheesus: Thanks xenxra
  10. xenxra @ xenxra: @Cheesus yeah, use snote
  11. P @ psychedpsych: Trump is cracking down….
  12. P @ psychedpsych: Hackers are the scum of the earth
  13. N @ NYStateofMind: so it was easy bc of my history
  14. N @ NYStateofMind: I didnt really tell him but he knew I needed a new script since my dr went to jail
  15. N @ NYStateofMind: @xenxra I was on Adderall since 15 years ago so my dr prescribed that w no problems and then when I lost my best friend my doctor rxed the valiums but
  16. C @ Cheesus: Temp.pm down for anyone else?
  17. xenxra @ xenxra: @NYStateofMind my doctor's have always been pretty open minded if i can actually come in and explain the pharmacological action of the drugs im seeking instead of just telling them why i think i should be prescribed. the only time it didn't work out for me is when i was trying pharmaceuticals for depression ten years ago and suggested they let me try testosterone instead (turns out i was hypogonadal so they made a mistake denying my request at face value)
  18. T @ Testisthebest: Even down here in Florida when the pill mill docs all switched over to Suboxone and/or retired you can still find some pretty liberal docs but you gotta know what to look for. Mine does "pain management, detox, anxiety,etc. And no insurance. My doc writes me 60 5mg Valium, 14 2mg Xanax and asked if I had ever tried adderal to get more focus at work as I told him I run my own business.
  19. N @ NYStateofMind: @Alkazar do they know your history? Like I dont tell my doctor anything about myself except what they need to know,...I was able to get my dr to rx the highest dose of adderall along with valiums ..... if they dont know your history or there is no history I would just come out and ask what is the reason for their mistreatment.... they have no problem billing your insurance or taking a payment for the visit
  20. T @ Turbo259: @Layne_Cobain Thank you fam
Back
Top