Very new but grateful

Aloneoncloud9

Aloneoncloud9

Member
Joined
Sep 18, 2015
Messages
14
Hello! First, I want to say thank you for this forum. I have never posted on or joined a forum before and I'm very happy this is my first. It's well laid out and easy to navigate. It also seems like there are a lot of intelligent people here and it's a safe place for anyone with common sense. Lastly, I just wanted to say hi and introduce myself. I'm 27 and have been diagnosed with fibro*myalgia and C F S. (Not sure if were supposed to slang those words up or not, LOL)  Fibro is a disease characterized by widespread chronic pain and about 30 other symptoms. I had given up hope at finding any sort of relief but this forum has at least given me a light at the end of the tunnel.

 
Hello,

This was the first forum that I ever joined and I  never would have imagined that I would like it so much that I'm a moderator! The information is great but the members are even better.  I hope you are on the way to some relief from pain and a better quality of life. That's what this place did for me and I'm eternally grateful. Welcome!

2earls

 
Welcome to the most awe-inspiring forum EVER,  lol 

seriously, do lots of reading before you start posting regularly.  It pays off BIG TIME!

we aare glad to have you!

 
2earls said:
Hello,

This was the first forum that I ever joined and I  never would have imagined that I would like it so much that I'm a moderator! The information is great but the members are even better.  I hope you are on the way to some relief from pain and a better quality of life. That's what this place did for me and I'm eternally grateful. Welcome!

2earls
Click to expand...
It definitely seems that way about the members and I am very grateful. Honestly, even just having a place to say what I'm going through to people who can at least empathize seemed to helped. I feel like I joined a club with people who are similar to me. 

(I learned how to quote, lol!!)

 
Last edited by a moderator:
Im glad i found this forum, not only so many members understand my pain( btw two of many of my problems fibro and cfs...not fun at all...

welcome aboard though /default_smile.png

 
sadminion said:
Im glad i found this forum, not only so many members understand my pain( btw two of many of my problems fibro and cfs...not fun at all...

welcome aboard though /default_smile.png
Click to expand...
Definitely not fun. I'm sorry to hear that. Have you found any treatments or ways to help it at all? Massage seems to provide a slight albeit temporary relief from the pain. 

 
If you have not done so yet, please read the rules and regs, and also read the thread entitled "helpful quoted information for new members" which is located in the same section as the introductions. There is a great deal of information there that you will need to know.
 
Again, welcome!  If you need anything, give me or 2earls a shout!
 
Cat
 
deep tissue massage helps me, but who can afford to get it every day :(...

the vitamins im on thanks for this place do help me at least exist on my not so horrific days..

honestly if i do not have them, i feel like crawling into a ball and never wake me please...lol, oh i know not funny at all.  But im sure you get it...

Has the disease disabled you any?  Ihad it for 15 yrs and though in pain was able to work and not have any hard core meds.....

but 7 yrs ago i woke up screaming...my mucles where popping all over like a seizure and nobody could touch me....

was bounced from doc to doc...

yes i do have osteo arthris and Ra arthritis along with some other so much fun stuff....and cfs...ebstein barr..omg list to long lol

They blame the pain im in on fibro....i wish they would find a cure,...instead of bandaid it with meds...

 
sadminion said:
deep tissue massage helps me, but who can afford to get it every day :(...

the vitamins im on thanks for this place do help me at least exist on my not so horrific days..

honestly if i do not have them, i feel like crawling into a ball and never wake me please...lol, oh i know not funny at all.  But im sure you get it...

Has the disease disabled you any?  Ihad it for 15 yrs and though in pain was able to work and not have any hard core meds.....

but 7 yrs ago i woke up screaming...my mucles where popping all over like a seizure and nobody could touch me....

was bounced from doc to doc...

yes i do have osteo arthris and Ra arthritis along with some other so much fun stuff....and cfs...ebstein barr..omg list to long lol

They blame the pain im in on fibro....i wish they would find a cure,...instead of bandaid it with meds...
Click to expand...
Me too. God that's horrible. I haven't had anything like that yet. I can't work currently because it's unmanaged right now. I'm waiting on a preauth from my insurance so I can get my leerica back. It was the only thing that help at all long term.  Ugh I just got over mono, I had it for four fricking months when it's only supposed to last three weeks. It was awful.  Look for a local school or college offering massage. Students usually have certain number of hours they have to get in so it's a lot cheaper.  Here it's around 20 dollars

 
i had mono when i was five, ebsten barr is from mono but its for life :(...it wakes up and goes to sleep..nasty cycle..

never thought about massage school..though im a bit afraid that someone doesnt know what there doing and pressing the wrong part on me..just hurts way to much...

have you tried gabspentin or the real name for it, norontin?  its not great but it does help the nerves in your body calm down.  I find any insurance i have will agree to this...it may take a bit to build up but hey for me ill try ANYTHING LOL

 
sadminion said:
i had mono when i was five, ebsten barr is from mono but its for life :(...it wakes up and goes to sleep..nasty cycle..

never thought about massage school..though im a bit afraid that someone doesnt know what there doing and pressing the wrong part on me..just hurts way to much...

have you tried gabspentin or the real name for it, norontin?  its not great but it does help the nerves in your body calm down.  I find any insurance i have will agree to this...it may take a bit to build up but hey for me ill try ANYTHING LOL
Click to expand...
 Yeah  I have a ton of it. I was actually trying to get rid of it lol. I don't like it. It didn't help the pain at all for me. The only thing that worked at all was Leerica and my insurance won't cover that right now /default_sad.png 

 
Really, oh that totally sucks...I cant do lyrica as my cholesterol is to high..even on meds for it...so if i take it and gain weight im in real trouble...

I do wish I could take it,  I hae seen people talking about it on here.  maybe put the name in the search feature on the board and see what pops up for ya...

and like i said in doubt and really cannot find it on your own, reach out to the staff.  they are the best and if they do know s place to get it, they will help you best they can :)...pm me any time you wish to chat :)

 
You must log in or register to reply here.
Drugbuyersguide Shoutbox
  1. T @ Tucker: @dspring01 , I have no idea how messages work on here but dspring01 , turn your settings on so you can receive direct messages instead of on here or threads.
  2. T @ Tucker: @dspring01 , I found out why I coulda’t send you a instant message. I believe you have yours turned off so that’s why. 👍👍
  3. G @ GrapePiss: longflourish
  4. H @ hotdog45: @CalFresh happy you're back my friend. Sent you an email
  5. CalFresh @ CalFresh: Hey all, I'm back up and running in a limited capacity for now. Hopefully full speed by the end of the week. Thanks to all for the overwhelming support. it feels so great to be part of a supportive community. Love you guys!
  6. Dr-Octagon @ Dr-Octagon: Dammit man
  7. M @ Mammasboi123: @Stevienixonn shout box is for non-vendor related convos IIRC. There’s a section of the forum for suggesting kratom vendors specifically. Check it out! Some great options in there.
  8. L @ Layne_Cobain: @Stevienixon cnc I believe
  9. T @ Tucker: Sorry @ dspring01, I just read your message wrong. No worries. 👍. Tried sending you a direct message but wouldn’t allow me. Maybe im at my limit, not sure. Good luck bud.
  10. D @ dspring01: @Tucker - I am sorry. What was your question?
  11. Stevienixon @ Stevienixon: Trying to find 7oh
  12. T @ Tucker: Hey @dspring01 what’s up with the sad looking face when asked where shipped too? Just asking
  13. F @ fyjclol: Scroll back & read it. Or read what he said on his thread.
  14. Saturnmeds @ Saturnmeds: What happened to calfresh? Someone stole his crypto?
  15. B @ bigblueallda: That sucks @CalFresh do you think it was an inside job? Or someone that knew.
  16. crimp @ crimp: do you live in a dangerous area maybe try moving to the country when you get back on your feet you seem to understant crypto beter then me so youll be on your feet in no time
  17. crimp @ crimp: do you live in a dangerous area maybe try moving to the country when you get back on your feet you seem to understant crypto beter then me so youll be on your feet in no time
  18. crimp @ crimp: glad youre good buddy
  19. CalFresh @ CalFresh: Thanks everyone. My family and I are safe ATM. @mellowella thank you, but they cleaned me out. the shelves are empty but I'm hoping to call in some favors to restock ASAP. @xenxra I will reach out to set up a secure comms channel for us. Thanks again all. Yesterday was tough, but the support I've received from those I can share is with has been a Godsend.
  20. tiquanunderwood @ tiquanunderwood: Mad love to you and your family @CalFresh
Back
Top