Very new but grateful

Aloneoncloud9

Aloneoncloud9

Member
Joined
Sep 18, 2015
Messages
14
Hello! First, I want to say thank you for this forum. I have never posted on or joined a forum before and I'm very happy this is my first. It's well laid out and easy to navigate. It also seems like there are a lot of intelligent people here and it's a safe place for anyone with common sense. Lastly, I just wanted to say hi and introduce myself. I'm 27 and have been diagnosed with fibro*myalgia and C F S. (Not sure if were supposed to slang those words up or not, LOL)  Fibro is a disease characterized by widespread chronic pain and about 30 other symptoms. I had given up hope at finding any sort of relief but this forum has at least given me a light at the end of the tunnel.

 
Hello,

This was the first forum that I ever joined and I  never would have imagined that I would like it so much that I'm a moderator! The information is great but the members are even better.  I hope you are on the way to some relief from pain and a better quality of life. That's what this place did for me and I'm eternally grateful. Welcome!

2earls

 
Welcome to the most awe-inspiring forum EVER,  lol 

seriously, do lots of reading before you start posting regularly.  It pays off BIG TIME!

we aare glad to have you!

 
2earls said:
Hello,

This was the first forum that I ever joined and I  never would have imagined that I would like it so much that I'm a moderator! The information is great but the members are even better.  I hope you are on the way to some relief from pain and a better quality of life. That's what this place did for me and I'm eternally grateful. Welcome!

2earls
Click to expand...
It definitely seems that way about the members and I am very grateful. Honestly, even just having a place to say what I'm going through to people who can at least empathize seemed to helped. I feel like I joined a club with people who are similar to me. 

(I learned how to quote, lol!!)

 
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Im glad i found this forum, not only so many members understand my pain( btw two of many of my problems fibro and cfs...not fun at all...

welcome aboard though /default_smile.png

 
sadminion said:
Im glad i found this forum, not only so many members understand my pain( btw two of many of my problems fibro and cfs...not fun at all...

welcome aboard though /default_smile.png
Click to expand...
Definitely not fun. I'm sorry to hear that. Have you found any treatments or ways to help it at all? Massage seems to provide a slight albeit temporary relief from the pain. 

 
If you have not done so yet, please read the rules and regs, and also read the thread entitled "helpful quoted information for new members" which is located in the same section as the introductions. There is a great deal of information there that you will need to know.
 
Again, welcome!  If you need anything, give me or 2earls a shout!
 
Cat
 
deep tissue massage helps me, but who can afford to get it every day :(...

the vitamins im on thanks for this place do help me at least exist on my not so horrific days..

honestly if i do not have them, i feel like crawling into a ball and never wake me please...lol, oh i know not funny at all.  But im sure you get it...

Has the disease disabled you any?  Ihad it for 15 yrs and though in pain was able to work and not have any hard core meds.....

but 7 yrs ago i woke up screaming...my mucles where popping all over like a seizure and nobody could touch me....

was bounced from doc to doc...

yes i do have osteo arthris and Ra arthritis along with some other so much fun stuff....and cfs...ebstein barr..omg list to long lol

They blame the pain im in on fibro....i wish they would find a cure,...instead of bandaid it with meds...

 
sadminion said:
deep tissue massage helps me, but who can afford to get it every day :(...

the vitamins im on thanks for this place do help me at least exist on my not so horrific days..

honestly if i do not have them, i feel like crawling into a ball and never wake me please...lol, oh i know not funny at all.  But im sure you get it...

Has the disease disabled you any?  Ihad it for 15 yrs and though in pain was able to work and not have any hard core meds.....

but 7 yrs ago i woke up screaming...my mucles where popping all over like a seizure and nobody could touch me....

was bounced from doc to doc...

yes i do have osteo arthris and Ra arthritis along with some other so much fun stuff....and cfs...ebstein barr..omg list to long lol

They blame the pain im in on fibro....i wish they would find a cure,...instead of bandaid it with meds...
Click to expand...
Me too. God that's horrible. I haven't had anything like that yet. I can't work currently because it's unmanaged right now. I'm waiting on a preauth from my insurance so I can get my leerica back. It was the only thing that help at all long term.  Ugh I just got over mono, I had it for four fricking months when it's only supposed to last three weeks. It was awful.  Look for a local school or college offering massage. Students usually have certain number of hours they have to get in so it's a lot cheaper.  Here it's around 20 dollars

 
i had mono when i was five, ebsten barr is from mono but its for life :(...it wakes up and goes to sleep..nasty cycle..

never thought about massage school..though im a bit afraid that someone doesnt know what there doing and pressing the wrong part on me..just hurts way to much...

have you tried gabspentin or the real name for it, norontin?  its not great but it does help the nerves in your body calm down.  I find any insurance i have will agree to this...it may take a bit to build up but hey for me ill try ANYTHING LOL

 
sadminion said:
i had mono when i was five, ebsten barr is from mono but its for life :(...it wakes up and goes to sleep..nasty cycle..

never thought about massage school..though im a bit afraid that someone doesnt know what there doing and pressing the wrong part on me..just hurts way to much...

have you tried gabspentin or the real name for it, norontin?  its not great but it does help the nerves in your body calm down.  I find any insurance i have will agree to this...it may take a bit to build up but hey for me ill try ANYTHING LOL
Click to expand...
 Yeah  I have a ton of it. I was actually trying to get rid of it lol. I don't like it. It didn't help the pain at all for me. The only thing that worked at all was Leerica and my insurance won't cover that right now /default_sad.png 

 
Really, oh that totally sucks...I cant do lyrica as my cholesterol is to high..even on meds for it...so if i take it and gain weight im in real trouble...

I do wish I could take it,  I hae seen people talking about it on here.  maybe put the name in the search feature on the board and see what pops up for ya...

and like i said in doubt and really cannot find it on your own, reach out to the staff.  they are the best and if they do know s place to get it, they will help you best they can :)...pm me any time you wish to chat :)

 
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  1. xenxra @ xenxra: @WTF7218 it may as well be that way with how little effort some of the people on here make to find information that's exactly where you would expect it to be.
  2. ontovzik @ ontovzik: When I had long term shingles, lasting two months. All he could give me was a 10 day supply of dilaudid. He looked at the ground while we were talking about it. I could tell he was ashamed but it was the legislature and the governor that tied his hands. He was very upset that non-medical political people, the media, and the scared public were controlling how he treated his patients. Someday those people will need meds and a hospital bed and they will be gone.
  3. ontovzik @ ontovzik: I had a great doctor, he had the true gift of a healer and he stayed on top of all the science. He straight up told me that for many people opiods work for managing short and long term pain.
  4. ontovzik @ ontovzik: He peed it in the snow in my backyard.
  5. WTF7218 @ WTF7218: @xenxra 😆😂. Yes, but only a few brave souls will ever find the number. You must first order a Dirty Shirley from the bartender. Then you must discreetly take the cocktail napkin from under your drink and unfold it. There you will find the map to the location of the phone number, and clues to decipher the code that it is written in.
  6. xenxra @ xenxra: he left his phone number scribbled in a stall at the pub three blocks down
  7. N @ NYStateofMind: @Alkazar I would try one of those easy online ones .. reddit gives useful info about that
  8. Alkazar @ Alkazar: @NYStateofMind I dont really have a history of abusing things, my docotr is just really stingy. I am thinking of switching.
  9. C @ Cheesus: Thanks xenxra
  10. xenxra @ xenxra: @Cheesus yeah, use snote
  11. P @ psychedpsych: Trump is cracking down….
  12. P @ psychedpsych: Hackers are the scum of the earth
  13. N @ NYStateofMind: so it was easy bc of my history
  14. N @ NYStateofMind: I didnt really tell him but he knew I needed a new script since my dr went to jail
  15. N @ NYStateofMind: @xenxra I was on Adderall since 15 years ago so my dr prescribed that w no problems and then when I lost my best friend my doctor rxed the valiums but
  16. C @ Cheesus: Temp.pm down for anyone else?
  17. xenxra @ xenxra: @NYStateofMind my doctor's have always been pretty open minded if i can actually come in and explain the pharmacological action of the drugs im seeking instead of just telling them why i think i should be prescribed. the only time it didn't work out for me is when i was trying pharmaceuticals for depression ten years ago and suggested they let me try testosterone instead (turns out i was hypogonadal so they made a mistake denying my request at face value)
  18. T @ Testisthebest: Even down here in Florida when the pill mill docs all switched over to Suboxone and/or retired you can still find some pretty liberal docs but you gotta know what to look for. Mine does "pain management, detox, anxiety,etc. And no insurance. My doc writes me 60 5mg Valium, 14 2mg Xanax and asked if I had ever tried adderal to get more focus at work as I told him I run my own business.
  19. N @ NYStateofMind: @Alkazar do they know your history? Like I dont tell my doctor anything about myself except what they need to know,...I was able to get my dr to rx the highest dose of adderall along with valiums ..... if they dont know your history or there is no history I would just come out and ask what is the reason for their mistreatment.... they have no problem billing your insurance or taking a payment for the visit
  20. T @ Turbo259: @Layne_Cobain Thank you fam
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